The monster inside of me- documentary teaser

It’s hard to watch this without feeling the pain of their battles. As I’ve relapsed in September and had seizures or tendencies to fall into one almost hourly, I know how nasty it is. I’m slowly coming out of it, but I’m still in lots of pain, and the cold, gray weather does not help.

I have to focus on one step at the time and keep moving forward. Is it sinister what’s happening to people suffering from this disease? Yes. Is this the only disease hurting others? No. This one, along with a few others are hard to diagnose, understand, and eliminate. So far. We hope the research will reveal a cure and the government will allow it.

Have a good day today and hope for a healthy tomorrow:)

God Bless:)

Lyme disease and non-epileptic seizures.

Danielle explains the seizures better than I can.

I got diagnosed with Neurological Lyme Disease plus co-infections back in 2014-2015 and that’s how I get attacked after a nasty flue/cold, or any elevated or prolonged stress in my life. I also have a hard time in public (especially after a relapse) around lots of people, places such as Costco, church, any restaurant, or grocery stores, festivals, or just crowds, like in airports. I used to love being in large crowds of people, their energy and happiness only increased mine, but now I hate being in crowds of people. When I relapse or have flare ups, talking to one person, looking them in the eye, fills me up with anxiety. It’s as if I can feel their pain or distress and I absorb it in my own body.

Thank God for Instacart app. They deliver the groceries you buy on line to your door for a small fee, or free if you buy a year membership. Amazon also delivers from Whole Foods if you live in Seattle, which we do, and these modern services are a complete blessing for people like me.

Nutramedix Burbur-Pinella tincture or warm lemon water helps me through these seizures, it calm the neurological system down, by cleaning all the toxins away and calming the whole wiring down. The Burbur helps fast while the lemon water is just a nice detox habit to have.

All Lyme warriors keep your spirits up today and God Bless:)

Justin Bieber Battling Lyme Disease

I’m not in Justin Bieber’s generation, more in Michael Jackson and Toby Mac, but finding out that he’s been battling Lyme Disease in 2019 (and maybe further back) its heart breaking. Any Lyme warriors will tell you its heart breaking to find out yet another victim fell in the paralyzing claws of this invisible yet severely vicious disease. Only those suffering know the truth that lies in the battle, and it’s a long battle, unfortunately. We pray and await the day when a cure will be found, so all the researchers out there, please hurry! Until then, I wish Justin, myself and every single fellow sufferer a great day void of pain and a complete recovery in the near future:) Love you all and God Bless:)

Happy B-day Chet:)

Always smiling, always strong, always steady:) The other compliments are for your ears only:) Happy Birthday dear friend:) We sure love you!

P.S. This is the awesome man that stands by my side always, the foundation on which I thrive, the support I lean against when times are tough and the joy I share with when times are good:) This is the man that holds my frail body when I fall, who coaches me through seizures, who tells me I must fight because his world would be so much darker without me. This is the man for whom I fight and make sure to feed well:) This is the father with so much patience and love for his children. This is the hero no one knows about it. The blessing God shared with me:) Chet

Seizure

 

 

I hope you get a chance to relax and enjoy this little video I shot and put together for you. Meditate on the things that matter to you, as I also do.

You see last week I had a nasty seizure which threw me back on my progress chart a few degrees, both physically and emotionally. It’s not easy to climb over thoughts such as “not again”, “will I ever”, “I just want to be” etc but giving up its not an option for me since I have too much to lose and would hurt too many people that I love. So I must go on. But getting back up, and moving forward while hurting, having half of my body not functioning as it should and wondering how long will it take until I fully recover is not as easy as you may think. I wish I could be poetic about all this but pain and struggle bring more misery than poetry (unless its some sort of emotional heartbreak and then you should see my muse dance and come up with all sorts of rimes and wisdom:) But for now I try not to fall on my face as I experience dizziness, I try not to walk into walls as my balance seems to be taking a vacation, and I try to smile through the pain all my limbs seemed to join in. I am weak and strong, frail and tough, happy and sad.

What caused such a relapse? Accumulation of stress (I like to collect:) Nasty flue which left a frail immune system exposed, taking up nursing duties as my family laid ill in their beds, work, and the happy visit of my cuz. But the body can’t recognize happy stress from bad stress, just files all that info in the “STRESS” file of my life while smiling knowing what’s to come. But I drove downtown! Took my cuz and my daughter to the Seattle Space Needle and other places and I’m sure inside my head there was a small voice protesting to all the exitement…which I clearly ignored. Did I learn my lesson? Depends on which side of the lesson you are. I would say, yes, then explain. I’ve learned that I have the strength to drive downtown (even if for a day every few months:) I’ve learned that my body is getting strong and able to handle more fun, I learned that relapses do happen and not to focus on them, I learned I’m fun again! Even if in a small increment at the time:) Did I learn my lesson? You be the judge, but I no matter what you decide I smile the whole way because I DROVE DOWNTOWN SEATTLE AND HAD FUN WITH MY CUZ AND DAUGHTER ON TOP OF THE SPACE NEEDLE, and that to me is priceless and worth every muscle twitch and pain;) I would do it all over again the same way, no regrets. Now go have a good time living life in whichever increments of strength you can muster, and when herxing (for my Lyme warriors or all with any autoimmune troubles:) smile because you got to the herxing reaction by living life and in the end you had a say, a choice, not the stupid illness that’s trying to kill us:)

God Bless:)

It’s been a while since we talked

D516A709-B2B0-4A0F-8052-D12A5AB364E9What a great summer this one was for us:) The apartment construction work is almost done. I had the most wonderful and unexpected visit for Easter from two of my brothers: Sergiu came from Germany and Flesh came from Romania. IMG_0666They took me completely by surprise:) We had a great time showing them Seattle, among other things and after they left and the weather warmed up, Chet and I spent many hours cycling on bike trails with my in-laws:) IMG_8327I also took lots of macro photos, a hobby of mine, and you can see one such photos at the very top (honey bee on a clover:)

I’m getting stronger every day. I have changed my Lyme tincture treatment to a new product and so far I think it helped me the most (or I’ve had lots of help from previous treatments and this one sort of sealed it). It’s a new product I found on Amazon called Holistic Tincture 7, made in Germany. It’s a 13 Herb tincture (Japanese Knotwood herbage, Teasel root, Cats Claw flower, Coriander herbage, Garlic, Hawthorn leave, Sarsaparilla root, Devil’s Claw root, Boneset leave, Astragalus root, Olive Leaves, Panax Ginseng root, Ginkgo leave) specifically design for those suffering from Lyme. Currently unavailable on Amazon as of today, but you can go directly on their website at http://www.biotraxx.eu to order. Heads up their info is in german (Amazon has an English version), and you need to take 20 drops three times a day for 6 months. One bottle lasts about 2.5 weeks. IMG_0265.jpeg

It really helped me so I hope it does the same for you:) (The cost is around $28 per bottle plus shipping $7).

This year we’ve celebrated our 26th Wedding anniversary:)B26CB92F-1A70-4DC3-9F93-62BD8A5CC31E

I’m grateful and I’m looking forward to the wonderful things to come in this life:) So keep on fighting for those ones not yet on the other side because there’s hope:)

Here are a few more pictures I like sharing with you:)

Have a blessed day and talk to you soon:)

It’s not that we’re dead, it’s that we barely feel alive.

This post is dedicated to one amazing young lady, you know who you are:)

The pain within is masked by how well we look on the outside. If only the world knew how much suffering is enveloped within each cell, each joint, each muscle and each neurological signal hidden in the matrix of our bodies. If only our friends knew how much we hoped to be part of what once was, if only the world would understand how loud they really are and how much that seems to bother us, suddenly. At one point we were part of the busy, loud and aggressive world but now we hide in suffering beds, feeling every surface of our tissues and wondering “what’s going on?” We’re silent about our suffering because, at times, we feel like we’re losing our minds, something truly terrifying. We can no longer comprehend what we’re reading and when you want to talk to us, we stare with a smile on our face trying to grasp the words that no longer make sense in our mind. Our bones hurt,  our identity and value hurt alongside as well.

We used to be normal. God, what happened?

These are the inner cries of those suffering from any autoimmune issues, such as Lyme disease, Chronic Lyme with multiple co-infections, Cancer, Fibromyalgia, Chronic fatigue syndrome, ME, Lupus, and many more. These are some of the unspoken words and emotions, fears and concerns lingering within.

But, on the other side of these emotions and fears (at one point in the past I felt them all and then some), stand those of us whom, with God’s help, are slowly coming out of such a dark road. We’re here to let you know that you’re not alone, not even close to it and THERE IS A LIGHT AT THE END OF THIS AWFUL TUNNEL. I’m starting to re-live my life, even better than before because I know now how valuable life truly is, how important people are but ultimately how important I also am. You are just as important:) I have boundaries, I keep toxicity at bay, I smile to the things I used to ignore and I ignore the things I should’ve deemed unimportant a long time ago.

Cheer on dear one, this too shall pass, and one day you’ll be back among your friends, most likely some new ones, and you’ll build new memories and you’ll laugh again full of life and most impotantly- full of health.

Thank you, God, for each day and God Bless:)

To the ride ahead and not behind I say “hello” with a smile on my face:)