Hope is a dangerous thing. It can break through any dark matter and bring along the light we need and long for.
I’ve purchased the latest expanded and revised book called Healing Lyme written by Stephen Harrod Buhner.
It’s been five years since I found out I had Lyme, so why wait until now to read some of these books ? I suppose due to couple factors. In the beginning 95% of anything I read I could not process or retain.Once I pushed past that I was too overwhelmed by the enormity of the situation, a situation without a positive finality. No cure for Lyme is something I hear often yet I have a hard time accepting. How I see it, there’s a cure for everything. We simply need to find it, and hopefully during our life-time.
The additional pain that comes from a relapse pushes me yet again into the research field, because we all know pain is the best incentive to make us act, and have come face to face, yet again, with the Buhner protocol, a treatment I heard about with many positive results but never tried it al least not in its entirety.
Yesterday was my first day, and all was good but today I have a very big headache and I feel funny (nausea, headaches, feel like Im getting a nose bleed, fatigue and pain behind my eyes). I’ll have to reduce the doses.
I’m following the example Buhner has in his book for a Neuroborreliosis protocol, since it got in my brain, which consists of the following tinctures.
*Polygonum cudpidatum or Japanese Knotwood tincture- 1/2tsp, 3-6x daily -for endothelial protection.
*Salvia Miltiorrhiza or Sage and Scutellaria baicalensis or Skullcap combined tinctures, 1tsp 3x daily for cytokine remodulation.
*Cordyceps/ Eleutherococcus/Uncaria tomentosa or Cat’s claw combined tincture, equal parts of each, 1.5tsp 3x day for immune remodulation.
*Glycyrrhiza or Licorice tincture, 1/4 tsp 3x daily. (not if you have high blood pressure) for immune remodulation.
Uncaria rhynchophylla, 1/2-1 tsp 3-6x daily for neuroborreliosis.
*Withania somnifera or ashwagandha. Powder: 1/2 tsp am, 1tsp before bed time (pm) for immune remodulation.
Tryptophan, 1500 mg 3x daily for neuroborreliosis.
*Great lakes gelatin powder, 1 Tbl. in the morning with water or juice for collagen.
*Vitamin C, 1000-3000mg daily for collagen protection.
*Selenium, 200mcg daily for collagen protection.
All supplements with a * are part of the core protocol, so you can add to this protocol based on your needs. The book has a long list of other tinctures to add.
In addition to this I take Sida Acuta tincture, since my body has always responded extremely well to it, weather is in IV form or tincture. I don’t respond well when its in pill format. Sida Acuta helps with tremors associated with neuroborreliosis.
Burbur-Pinella tincture helped with the headache.
Like I said, hope is a dangerous thing, it stubbornly pushes through dark walls looking for a way out. God, I pray I’ll find my way out so others can find theirs. Thx.
Anuntam cu mare drag si entuziasm, ca pe 15 Octombrie 2021, ne vom intoarce in Europa! Nu cred ca ne vom intoarce in Romania imediat, dar vom fi in Europa, detaliile inca nu sunt finalizate:)
Pe 15 Octombrie 1993 am plecat din tara dupa nunta si casatoria cu sotul meu american, Chet si am decis ca ar fi poetic sa ne intoracem tot pe 15 Octombrie:) Alex, baiatul cel mic va termina liceul anul viitor si pe urma in toamna venim inapoi:) In primavara vom vinde si apartamentul aicea:)
Ne va fi mare dor de America, si de prietenii si familia de aicea, dar vom avea bucuria de a putea petrece timp cu familia si prietenii din Europa:)
October 15th 1993- was the year I left Romania right after I married Chet:) It’s been a long time. So both Chet and I found it poetic to return back to Europe, most likely not Romania just yet, next fall, October 15th 2021:)
We’re selling our condo here this spring and will be renting until the time comes to fly back and be closer to my other side of the family and friends. We’ll miss America tremendously!!!!! I love it here! I’ll miss my family and friends here as well, but my heart is calling me back home.
So with great excitement, Chet and I are looking forward to our new adventures ahead. It will be hard to leave but it’s time.
So my friends and family back in Europe, we’ll see you soon!!!!!!
Imagine me sighing now, because that’s what I’m doing and I haven’t begun writing this blog yet.
Thank God for artist like Mandisa, for friends and loved ones, for great hubbies and wives, for sisters, parents, brothers, for friends and for those wonderful people who do research work so we can find The Cure. We must find the cure! There are only so many relapses we can walk through with our heads high and hope filled hearts. But we do it! Ultimately thank God for life, shitty like it is at times is better than not having it.
Recovery from a chronic illness is an up-and-down process.* No need to beat around the bushes about this, those who suffer know this truth.
Just when you think everything is turning around, a set back kicks you in the …well just about everywhere. You’re on your back, in bed, wrapped in the blanket of pain and now what? Why God? Why again? Did I eat the wrong thing? Did I do too much? Took the wrong medication? And you trace back every single step with a fine brush and can’t seem to find anything. Or maybe you do.
My #1 flaw. With increase of energy my thirst for life returns and I end up wanting to do all those things I dreamed of doing while imprisoned in bed, so I do them! And for brief periods of time I feel like I belong in the vast community of humans where I too look and behave normal, where pain and disease are not the subject of the day, where I can be stupid and silly and alive. That’s when I collected memories. That’s what I call it. These memories are worth every single stab of pain I feel later on, because Lyme punishes us like that. If you see me out there in the world and if I’m visiting you or you’re visiting me, I’m living and loving it, even if I know Lyme’s punishments will come later on.
Fortunately, with time, these setbacks gradually become less common and less intense. * True. At least it is for me.
System disruptors that cause setbacks: poor nourishment, toxins, emotional stress, physical stress, oxidative stress (increase in inflammation), radiation (from computers and cell phones), microbiome imbalance (new bite, flue, cold, Herxheimer reaction, flu vaccine), bacterial and viral fare-ups (Epstein-Barr virus reactivation, other herpes- type viruses, Borrelia, Mycoplasma etc), drug reactions, inadequate sleep, and/or allergic reactions to herbs or drugs, or even food, travel or stressful events, or if you’re like me I enter complacency- do more and eat more sugar. The weather changes also affect us, less sun and more cold, rainy, humid days bring the flare-up fast. Cancer, menopause and other such unexpected illnesses, it can do a number on the body.
General Guidelines: If you can get sun or move to a sunny area, do it. REST!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Did I make that clear? I hope so:) Lots of liquids and when I say liquids I mean water, tea (ginger) and natural non-sugary drinks. Vitamin C, turmeric and boswellia to reduce inflammation, Enzymes to help you break down the food you eat. The best one is just eating pineapple or take Bromelain, Omega-3 fatty acids, heat, CBD oil (I take that quite a bit during flare-ups, it keeps me sane), herbal supplements, go outside and breath fresh air and walk barefoot on the dirt, meditate, make your world smaller, try to exercise-Yoga is good- (now this is one of those catch 22 issues, flare-ups brings along severe fatigue symptoms and we only have a certain small amount of energy every day and many times we have to choose between cooking or exercising) but endorphins suppress pain and enhance immune function.
And the hardest one of all, figure out how to reduce fear. Yeah, easier said than done, right?
How do I do it? Well, I cry first and I get angry then I start formulating a plan. I’ll give you some ideas, but if you have other ones please share them and I’ll add them here.
What do I want to do this summer? Realistic goals only. Everyone can make their way outside and lay on a piece of grass and soak the sun, for example. So look forward to those activities.
What new recipes do I want to make? (Most days I only want to eat sugar, so this one is tough:).
What friends do I want to see once I feel better? Assuming they’re still talking to me;)
How can I be part of my children’s lives more?
What hobby brings me peace? I should start that hobby then. So on.
In conclusion, please rest, surround yourself with good and positive encouragement material via books, shows, friends, activities and look forward for the happy spring and summer seasons. Keep fighting because a cure will be found:)
I hope some of this information has been helpful to you:)
* Quotes or information taken from Williams Rawls book, Unlocking Lyme.
The adrenals, thyroid and menopause mess our hormones radically. Pregnancy, for some reason, improves the wellbeing of the mother but after delivery there’s another story.
Personally I had to reboot the adrenals, and pre-menopause began in 2017 during my mercury fillings removal procedures. Another can of worms opened as pre-menopause settled in and later on in 2019, menopause.
“Adrenals sit on top of the kidneys, one for each kidney. The middle portion of the gland secrets the hormone epinephrine, better knows as adrenaline. The outer portion of the adrenal gland secrets cortisol. These two stress hormones define how you will react to stress of any sort. “*
I was operating in the sympathetic response only, the fight and flight response, unable to relax any longer and let the body heal. This was not intentionally done. I was severely fatigued all the time without the ability to rest, as I’ve previously mentioned. This is very typical in Lyme patients. I’m being tested in March for Addison’s disease since the latest blood test looking at the levels of cortisol in the morning came back low.
Hormones influence our emotions, and depression, anxiety, moodiness and other similar emotions are the results. My adrenals are fatigued and among Lyme patients this is a prominent finding.
This area is so in- depth I would only bore you to death talking about it and there are lots of youtube videos which do a better job at it than I would, so I’ll leave it at that.
How can you help your hormones and stress level?
Slow down your activities and try to slow down your mind, it’s very difficult I know because I’m still trying. Meditate, do yoga, watch non-violent shows and movies, choose non-violent subjects in your daily communications, walk barefoot on the grass and dirt outside, stay in the sun as much as possible.
Ashwagandha, Licorice and Asian Ginseng (panax ginseng) are good herbs to take. Avoid Licorice if you have insomnia and high blood pressure.
If you have a thyroid disfunction there are prescription drugs the doctor will prescribe for you. Ashwagandha, iodine or L-tyrosine are a natural route for supporting the Thyroid gland.
Menopause, a natural tornado as I call it, brings along with it too many imbalances and for those fighting Lyme, chronic Lyme, and other serious illnesses and diseases it’s a very unpleasant layer of crap on top of all the other layers of crap they have to deal with already. Ashwagandha helps to reduce the hot flashes, the herb VITEX restores progesterone secretion and normalizes the menstrual cycle and abstinence from sugar helps reduce the hot flashes (something nearly impossible to do with all the cravings that come along with menopause).
I hope some of this info can help someone, and chin up, the cure is coming.
Biofilms are colonies of microbes. They hide safely inside a protective polysaccharide shell which protects the organisms inside from starvation, drying out, the immune system, and antibiotics. Inside they’re free to mingle and exchange information.* As M.D. William Rawls put it in his book Unlocking Lyme; “imagine a crowded dance floor with bodies squeezed together forming a uniform mass swaying to the rhythm of the music.”
If immune function is compromised, like in chronic immune dysfunction, biofilm can form on surfaces of the body. It’s very hard to rid your body of these biofilms and when the bacteria, viruses, protozoa and fungi finds the environment safe they come out (multiplied by now) and goes wild in the body causing the known relapses and/or other complications.
Common biofilm illnesses include bacterial vaginosis, chronic UTI’s, chronic sinusitis, chronic bronchitis, middle ear infections in children, heart valve infections. “Lyme disease is not primarily a biofilm disease.” According to M.D. William Rawls. However, symptoms of Lyme disease are caused by the bacteria manipulating the immune system to generate inflammation, and it can allow the biofilm generated by other bacteria to flourish. Ex: Dizziness common in Lyme disease may be related to biofilm formation with calcium deposits in the inner ear probably caused by other baacteria.*
How can you overcomebiofilm?
A strong immune system will do it:)
Herbal therapy with antimicrobial and immune-enhancing properties (garlic, zinc, elderberry, echinacea, mushrooms, sage, artemisia, calendula, capsicum etc). Personally I respond really well to artemisia.
Essential oils like eucalyptus and thyme.
Monolaurin- comes from coconut fat.
NAC (N-acetyl cysteine.
EDTA, a chelating agent.
Oxygen and nitric oxide. *
More research is needed and being done on biofilm, but one think research has shown is the ineffectiveness of antibiotic treatment against biofilms.
On a personal note, I believe based on the research I did, that lyme bacteria can hide for years in these biofilm colonies, multiply and get stronger and a compromised immune system due to trauma, accident or serious illness can trigger them and set them free to cause extensive damage in the body. For me personally was a combination of my little brother Fanu passing away and third pregnancy. I absolutely love Alex, my third and don’t regret anything but I will forever miss my little brother, Fanu.
Hope some of this information has been of help to you today and keep fighting, a cure may be around the corner:)
*Quotes or information taken from the book Unlocking Lyme by William Rawls M.D.