Hope is a dangerous thing. It can break through any dark matter and bring along the light we need and long for.
I’ve purchased the latest expanded and revised book called Healing Lyme written by Stephen Harrod Buhner.
It’s been five years since I found out I had Lyme, so why wait until now to read some of these books ? I suppose due to couple factors. In the beginning 95% of anything I read I could not process or retain.Once I pushed past that I was too overwhelmed by the enormity of the situation, a situation without a positive finality. No cure for Lyme is something I hear often yet I have a hard time accepting. How I see it, there’s a cure for everything. We simply need to find it, and hopefully during our life-time.
The additional pain that comes from a relapse pushes me yet again into the research field, because we all know pain is the best incentive to make us act, and have come face to face, yet again, with the Buhner protocol, a treatment I heard about with many positive results but never tried it al least not in its entirety.
Yesterday was my first day, and all was good but today I have a very big headache and I feel funny (nausea, headaches, feel like Im getting a nose bleed, fatigue and pain behind my eyes). I’ll have to reduce the doses.
I’m following the example Buhner has in his book for a Neuroborreliosis protocol, since it got in my brain, which consists of the following tinctures.
*Polygonum cudpidatum or Japanese Knotwood tincture- 1/2tsp, 3-6x daily -for endothelial protection.
*Salvia Miltiorrhiza or Sage and Scutellaria baicalensis or Skullcap combined tinctures, 1tsp 3x daily for cytokine remodulation.
*Cordyceps/ Eleutherococcus/Uncaria tomentosa or Cat’s claw combined tincture, equal parts of each, 1.5tsp 3x day for immune remodulation.
*Glycyrrhiza or Licorice tincture, 1/4 tsp 3x daily. (not if you have high blood pressure) for immune remodulation.
Uncaria rhynchophylla, 1/2-1 tsp 3-6x daily for neuroborreliosis.
*Withania somnifera or ashwagandha. Powder: 1/2 tsp am, 1tsp before bed time (pm) for immune remodulation.
Tryptophan, 1500 mg 3x daily for neuroborreliosis.
*Great lakes gelatin powder, 1 Tbl. in the morning with water or juice for collagen.
*Vitamin C, 1000-3000mg daily for collagen protection.
*Selenium, 200mcg daily for collagen protection.
All supplements with a * are part of the core protocol, so you can add to this protocol based on your needs. The book has a long list of other tinctures to add.
In addition to this I take Sida Acuta tincture, since my body has always responded extremely well to it, weather is in IV form or tincture. I don’t respond well when its in pill format. Sida Acuta helps with tremors associated with neuroborreliosis.
Burbur-Pinella tincture helped with the headache.
Like I said, hope is a dangerous thing, it stubbornly pushes through dark walls looking for a way out. God, I pray I’ll find my way out so others can find theirs. Thx.
Imagine me sighing now, because that’s what I’m doing and I haven’t begun writing this blog yet.
Thank God for artist like Mandisa, for friends and loved ones, for great hubbies and wives, for sisters, parents, brothers, for friends and for those wonderful people who do research work so we can find The Cure. We must find the cure! There are only so many relapses we can walk through with our heads high and hope filled hearts. But we do it! Ultimately thank God for life, shitty like it is at times is better than not having it.
Recovery from a chronic illness is an up-and-down process.* No need to beat around the bushes about this, those who suffer know this truth.
Just when you think everything is turning around, a set back kicks you in the …well just about everywhere. You’re on your back, in bed, wrapped in the blanket of pain and now what? Why God? Why again? Did I eat the wrong thing? Did I do too much? Took the wrong medication? And you trace back every single step with a fine brush and can’t seem to find anything. Or maybe you do.
My #1 flaw. With increase of energy my thirst for life returns and I end up wanting to do all those things I dreamed of doing while imprisoned in bed, so I do them! And for brief periods of time I feel like I belong in the vast community of humans where I too look and behave normal, where pain and disease are not the subject of the day, where I can be stupid and silly and alive. That’s when I collected memories. That’s what I call it. These memories are worth every single stab of pain I feel later on, because Lyme punishes us like that. If you see me out there in the world and if I’m visiting you or you’re visiting me, I’m living and loving it, even if I know Lyme’s punishments will come later on.
Fortunately, with time, these setbacks gradually become less common and less intense. * True. At least it is for me.
System disruptors that cause setbacks: poor nourishment, toxins, emotional stress, physical stress, oxidative stress (increase in inflammation), radiation (from computers and cell phones), microbiome imbalance (new bite, flue, cold, Herxheimer reaction, flu vaccine), bacterial and viral fare-ups (Epstein-Barr virus reactivation, other herpes- type viruses, Borrelia, Mycoplasma etc), drug reactions, inadequate sleep, and/or allergic reactions to herbs or drugs, or even food, travel or stressful events, or if you’re like me I enter complacency- do more and eat more sugar. The weather changes also affect us, less sun and more cold, rainy, humid days bring the flare-up fast. Cancer, menopause and other such unexpected illnesses, it can do a number on the body.
General Guidelines: If you can get sun or move to a sunny area, do it. REST!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Did I make that clear? I hope so:) Lots of liquids and when I say liquids I mean water, tea (ginger) and natural non-sugary drinks. Vitamin C, turmeric and boswellia to reduce inflammation, Enzymes to help you break down the food you eat. The best one is just eating pineapple or take Bromelain, Omega-3 fatty acids, heat, CBD oil (I take that quite a bit during flare-ups, it keeps me sane), herbal supplements, go outside and breath fresh air and walk barefoot on the dirt, meditate, make your world smaller, try to exercise-Yoga is good- (now this is one of those catch 22 issues, flare-ups brings along severe fatigue symptoms and we only have a certain small amount of energy every day and many times we have to choose between cooking or exercising) but endorphins suppress pain and enhance immune function.
And the hardest one of all, figure out how to reduce fear. Yeah, easier said than done, right?
How do I do it? Well, I cry first and I get angry then I start formulating a plan. I’ll give you some ideas, but if you have other ones please share them and I’ll add them here.
What do I want to do this summer? Realistic goals only. Everyone can make their way outside and lay on a piece of grass and soak the sun, for example. So look forward to those activities.
What new recipes do I want to make? (Most days I only want to eat sugar, so this one is tough:).
What friends do I want to see once I feel better? Assuming they’re still talking to me;)
How can I be part of my children’s lives more?
What hobby brings me peace? I should start that hobby then. So on.
In conclusion, please rest, surround yourself with good and positive encouragement material via books, shows, friends, activities and look forward for the happy spring and summer seasons. Keep fighting because a cure will be found:)
I hope some of this information has been helpful to you:)
* Quotes or information taken from Williams Rawls book, Unlocking Lyme.
Lyme is a cruel disease. The co-infections that come along with it are horrendous and most often worse than Borrelia Burgdorferi alone.
Co-infections I suffer from are: Babesia Duncani, Bartonella, Mycoplasma Pneumoniae. In addition there’s Ehrlichia/Anaplasma/Rickettsia (the worst one) and Chlamydia. There are said to be hundreds of Borrelia versions yet undiscovered.
Viruses such as Epstein Barr Virus, Streptozyme (strep infection), MMV6 Herpesvirus have been found in my body. In addition to these there are also CMV or Cytomegalovirus, hepatitis B and C, HSV-1, HSV-2, herpes virus, HHV-6a, HHV-6b, HHV-7, parvovirus B-19, adenovirus are the most commons. There are thousands more, some undiscovered yet. Most people are carriers of some of these viruses but the immune system is stronger and keeps them in check. For Lyme patients these only add to the multi-head-monster-disease and cause serious damage.
In addition intestinal parasites, mold and toxicity and some genetic cellular dysfunctions such as HTGF C677T mutation was positive for me, a critical enzyme required for a metabolic process that repairs DNA. But the list is long in this criteria as well.
There’s also a vitamin deficiency usually present such as Vitamine D, B, and magnesium; these were in my case and can vary for others. Also the HTGF B1 or Human Transforming Growth Factor was high in my case meaning high amount of inflammation present in the body.
By now I had non-epileptic seizure (I learned that later) all the time, paralysis of arms and feet, tingling of extremities, face and lips, among my many other symptoms.
I’ve seen cardiologists, neurologists, urologist and was referred to immunologist, endocrinologist, but due to feeling too weak to stand and too poor I opted out of some.
I had Lyme for years, but I got re-bit and the high amount of trauma/stress at the time (my little brother died, pregnancy #3, school, trip to Europe and work) triggered the monster.
Symptoms of Lyme Disease and Co-infections for me: flu-like symptoms it’s how it began with face pallor, chills, muscle ache, low fever then high fever and malaise. Added along the way: numbness and tingling of upper and lower extremities, face and lips. Constant nausea. Peripheral blindness, air hunger (Babesia), rashes, joints, muscles and bone pain around the clock, dissociation, fog vision, fainting spells, rapid weight loss without activity, hyper-sensitivity to noise and light, hyper-anxiety, irritability, depression, ghost like facial paler, loss of hair/eyelashes and eyebrows, bitter/metallic taste in the mouth, stomach discomforts, swollen lymph nodes, left side pain in the spleen region, shallow breathing, irregular an heavy periods, headaches, confusion, loss of memory especially short memory, speech impairment, swollen eyelids, ovary and bladder pain, chronic UTI’s, Bell’s palsy on the right side of face, non-epileptic episodes, to name a few.
How to treat?
Since there’s no cure for Lyme Disease yet, the treatments are very controversial in the western medical circles and three weeks of antibiotics only helps half of the patients while the other half go on a life long debilitating and severely painful battle.
Advise #1 from me: Fight for your life and don’t allow the doctors to brush you aside as if you’re crazy. Most likely they’re frustrated as well by the lack of knowledge on this subject and most are scared of the CDC, a corrupt and criminal corporation in my opinion, not looking out for patience at all.
Antibiotic treatment may have helped a limited amount of people but science shows the presence of Borrelia in tissues even after treatment.
A holistic systematic approach to healing has proved to help. Tincture protocols like Buhner and Cowden as I mentioned in previous steps seem to help tremendously. Herbs and aromatherapy also do wonders, and are far more affordable than antibiotic IV’s.
Core Herbal Protocol*
Resveratrol from Japanese Knotweed: 200-800 mg, 2-3 time a day.
Andrographis: 200-800mg, 2-3 times a day.
Cat’s Claw: 400-800mg, 2-3 times a day.
Chinese Skullcap: 400-1000mg, 2-3 times a day.
Garlic with stabilized allicin:180-1200mg, 3x daily.
Sarsaparilla: 200-1000mg: 2-3 times a day.
Cordyceps: 1-3 grams (1000-3000mg); 2-3 times daily
Reishi: 1000-2000mg, 2-3 times a day.
Eleuthero: 50-200mg 2x a day.
Alpha Lipoic acid
Resveratrol from Japanese Knotweed
French Maritime Pine Bark
* Treatment info comes from the book Unlocking Lyme by William Rawls, MD. Most of these treatments I take with great results. It’s the relapses that suck.
Gut restorative supplements as well as toxin and mold removal are a must. (See previous Series for more info).
Hope some of this information can help you find some answers and gives you some tools towards getting better.
It’s hard to watch this without feeling the pain of their battles. As I’ve relapsed in September and had seizures or tendencies to fall into one almost hourly, I know how nasty it is. I’m slowly coming out of it, but I’m still in lots of pain, and the cold, gray weather does not help.
I have to focus on one step at the time and keep moving forward. Is it sinister what’s happening to people suffering from this disease? Yes. Is this the only disease hurting others? No. This one, along with a few others are hard to diagnose, understand, and eliminate. So far. We hope the research will reveal a cure and the government will allow it.
Have a good day today and hope for a healthy tomorrow:)