Lyme Disease
Mom
Mom, by Carmen McKnight

I want to tell you something, mom,
I want to call your phone.
My little boy tomorrow
Will turn into a man.
He’s grown, can you believe it?
I thought one day you’d meet him
But now that’ll never happen
At least not on this earth.
I can’t believe you’re gone now
I can’t accept the void
I long for your advise now
The one I used to ignore.
I long to hear your voice
And tell you of my latest choice
Of dinners cooked, furniture moved
And how I got my kidney stone removed.
How will the goal inside
Be ever filled again?
How will my broken heart
Be filled with warmth, not pain?
I want to tell you something mom.
Tânjire
Tânjire, de Carmen McKnight

Să fac o pâine azi am încercat
Dar văd că iarăși tot în bară-am dat.
Făr ou, făr lapte și fără făină
Păi ce mai iese-atunci? Doar o ruină.
Și-afară-i cald. În cas cuptorul e închins.
Sudori mă trec acum de mă ucid,
Și greu respir și nervi mă cam apucă
Că iar o pâine bleagă se aruncă.
Departe sunt de țară și de frați,
Departe sunt de mamă și de tată
Și gândul mi se duce la Carpați
Și dor după covrigi sărați.
Și iar o rudă de departe a murit, mă ofilește
Dar raiul tau pe veșnicie îl împodobește.
Of Doamne bun mai tot se risipește!
Dar cel mai tare inima-mi jelește
După cei frați, creștini, biserica oferă.
Și în trecut inima mărturisește
O timelie cu Isus întemeiște.
Lui Dumnezeu îi mulțumesc mereu
De viața asta, bună, rea, așa cum e
Și cel mai drag mi-e de mărturisirea sa
Că va fi lângă mine ….pururea
Deși pământ străin acum al meu picior abate
In Dumezeu fundația mea străbate
Și ochii către cer ridic adeseori
Când tot străin mă simt în asta abator.
Mica. We’ll miss you forever.

My daughter, Meleah’s small little cutie, passed away last night, at nearly sixteen years old. They’ve been together since Meleah was ten years old, and now, at twenty-four, she had to say goodby to one of her best friends. We’ll miss her prancing about, wagging her tail always so happy to see us. For such a tiny “Bean” as Meleah used to call her as a nick-name, she’s leaving a huge gap in our hearts.
Good-by dear Mica.
PACE

Pace, de Carmen McKnight
De unde vii? Vii de departe?
Și unde pleci? Hai mai aproape!
Și cât timp stai? Jumi-Juma?
Și ce-o să faci? Un pic așa?
Și ce vei zice când te-o întreba
De viața ta? De viața mea?
Vei sta aproape? Vei dărâma?
Tot ce nu merge, vei constata?
Când eu voi plânge tu vei pleca?
Când voi învinge, te vei bucura?
Când slab voi fi, vei confisca
Tot cei menit pentru a trata
Ast vis real plin de una, alta?
De unde vii? Când vei pleca?
Române
Române, de Carmen McKnight

Măi Române! Campioane!
Ce mai faci tu, năzdrăvane?
Tu ești bine? Ai noroc?
Sau te bucuri de un joc?
Te deparți de-ai tăi dușmani?
Sau mănânci un pandișpan?
Mai tai azi un lemn sau doi?
Tu ai grijă ce îndoi!
Ori ești mare bucătar?
Mai degrabă lăutar.
Cât e ziulica lungă
Ai să cânți să tot ajungă?
Ai parale? Mânci sarmale?
Sper să nu dai de belele.
De prin jur pe cin-gonești?
Ce prin viață socotești?
Dar până la o urmare
Vreau să-ți zic în gura mare
Eu aștept cu nerăbdare
Curând să ne revedem.
Și cu drag ne-mbrățișăm
Și de viață să tratăm
Și să fim tare aproape
Că distanța sapă groape.
Lego therapy- could it work for Neuroplasticity?

“Inflammation is the body’s response to injury. When your brain is inflamed your ability to form short-term memories is impaired.“-The 30 day Alzheimer’s solution by Dean Sherzai, MD and Ayesha Sherzai, MD.
neu·ro·plas·tic·i·ty– The brain’s ability to reorganize itself by forming new neural connections throughout life. Neuroplasticity allows the neurons (nerve cells) in the brain to compensate for injury and disease and to adjust their activities in response to new situations or to changes in their environment.-MedicineNet
It explains why I had such an uphill battle the past 8 years with my memory, why I would forget words, had a hard time comprehending anything when spoken to, skipped words or use them in a misplaced order when I spoke back. It explains why my brain felt on fire and why neurologically I still have to work hard to get back to my normal self.
However, in every troubled times there’s always a solution or multiple solutions, if one seeks them. Diet is -in my personal experience- more important than medication, followed by a strong support system, then medication. In order to eliminate inflammation from the body, dairy must be kicked out as if you would an intruder present there to bring harm. Red meat also triggers inflammatory reactions, and so does processed foods. I’ve done my best to follow these guidelines, but I too fall at times.
I‘m not afraid to experiment on myself and I would do it drastically if my medical knowledge was more extensive. So when my brain could not remember everyday words such as eggs, or the name of one of my best friends, Elizabeth, or most of the English language while reverting back to my native tongue, Romanian, I knew I was in trouble. I also knew I had to do something. Before I go any further, please realize that any advise I give, comes from personal experience and years of hard work. It’s not a magic pill, or an instant miracle. It takes a lot of perseverance and hard work to more forward when battling chronic disease. I hate the thought of just giving up and letting these idiotic and invisible to my naked eye enemies win while using my own body as the battle field. That’s just me.
Getting back to; I knew I had to do something, I learned to really tune into my body, to listen to what it had to say in regard to the recovery process. It strongly pulled me away or towards certain treatments and I listened. So when out of the blue I became obsessed overnight with the idea of playing with legos- something I NEVER did as a child- I began looking into that. I call it my lego therapy. I bought off Craigslist a large bucket of legos pieces and became obsessed to finding the sets they belonged to. An outside looking in would’ve seen a woman in her early 40’s playing with legos 4-5 hours a day for months. What I was trying to do was quite different: I was aware that some re-wiring work needed to take place in my brain. On an emotional level I knew each lego piece belonged to a set, had a destiny, was part of a bigger picture, so my relentless searching began involving the internet until each piece found it’s set and the chaos of single lego pieces got smaller with time. In a way I was looking for my place in life, I was trying to fix the chaos I felt my life became. Piece by piece, day after day I found their set or where they belonged all along with my right arm behind my back. You see I’m a righty and I knew by challenging my left hand coordination neurons barely used would have to fire up and get moving. I was rebuilding.
Why did I do it? I was aware many of my old neurological highways were burned down by this disease or breaking down faster than I could keep them solid and I had to rebuild new ones, re-route so to speak. I knew it would also take time and perseverance but I was determined to give it my all before dying. If I were to die anyway at least I knew I fought and not just surrendered myself to what will be will be.
What I experienced. I am not a neurologist, and if one reads this blog and can explain medically what happened please do so. From the moment I picked up my first lego piece with my left hand and tried in the most infantile of ways to build my sets-one handed I remind you- I’ve experienced simultaneously a heightened level of a new kind of frustrations and a buzzing in my brain so loud I thought I would go crazy. It was as if a hornets nest got shook badly and shoved inside my brain. Angry hornets like buzzed so loudly it challenged my already frail focus power further. Headaches followed. Bad headaches. The noise/ buzzing lasted as long as I would work on my legos, which on any given day was between 4-5 hours, but I refused to back down, both intrigued by the things I experienced and slave to the obsession of completing my work. (I’ve never experienced obsession this intense before.) By day 3 the buzzing noise was less intense and by day 10 the buzzing noise was so faint I forgot of its existence all together. It took a good month before it was gone completely. I was still left with a horrid coordination challenge, resulting many times in my throwing legos about only to return once I calmed down to my work. That too slowly improved and eventually I became more coordinated, picking up muscular strength as well and mental accuracy. When I wasn’t doing my lego therapy I began to remember things I once forgot, and hold on to short term memories longer than few seconds. I stopped my lego therapy once all the sets were complete- 39 sets total and six months later- and put the whole thing away. I know I’ve helped my brain re-wire communication paths, hold on to memories and bring back forgotten memories. How I know that? I began writing poems – I hated poems before- they just came to me, and still do. In my book “It’s Lyme Stew Time” that can be found on Amazon you can see the difference of before treatment and after from an inspirational point of view. I’m no literary genius, but I’m fascinated with my progress in a scientifically sort of way.
After nearly two years of a frozen shoulder or adhesive capsulitis on my right shoulder my right arm got weak along with my neurological signals to and from that side. So I’m planning on stimulating them with more lego therapy-plus I missed my lego time. My left arm has been doing a fantastic job taking over and getting strong.
If you’re struggling with coordination issues and neurological side-effects from a chronic disease, maybe lego therapy will help you as well. You never know. It helped me tremendously and I’m glad I listened to my body.
I wish you a good day today and God Bless:)
P.S. I prefer only Lego Friends sets. It has something to do with the soft girly and happy colors, they are so soothing to my brain -the original lego colors were too intense producing agitation. I’m partial to the bakery, B-day parties and vehicles sets:)
Probleme

Probleme, Poezie scrisă de Carmen McKnight
Uite, cine te vorbește,
Și de rău te-n-vinuește?
Este Ghiță Basarab
Mare “dinte în ciorap.”
Eu ți-am zis să te ferești
Și pe el să-l ocolești
Dar tu mare căpoșan
N-ai știut că faci dușman?
Și tu vrei acum dreptate,
De departe? Nu se poate frate!
Acum trebuie să ierți
Și de Ghiță să tot uiți.
Să prinzi zâmbet și pă față,
Și învață din ast viață
Că nu trebuie să suferi
Și să tot aduni pe suflet.
Râzi, mănâncă, veselește
Că nu știi ce vine mâine
Ce problemă te-ntâlnește
Și-o fi greu să prinzi o pâine.
Dă mulțami lui Dumnezeu
Că amu nu-ți este greu
Mai termină un liceu,
Vizitează un muzeu.
Că necazul vine iute
Dă pacea pe dispărute
Lasă mințile-abătute
Și gurile cam tăcute.
Dar de prinzi curaj să râzi
Și obraji tăi să uzi
Cu lacrimi de bucurie
Vei trăi în armonie.
DIY-How to catch ticks this summer

I think this is brilliant:) I can’t take credit for the idea since some other brilliant soul came up with this, but I will share with utter conviction if that means saving you from any tick harm. And I love the humor in it, but seriously getting bit by a tick could be a nasty business that takes a lifetime to get over it. So be careful out there but don’t let the fear of ticks stop you from living! I personally thought of wearing a painter’s suit, those plastic cheep ones you find at Home Depot, when I feel like going for a walk in the mountains or any areas where ticks are. There’s tick repellents on the market as well, personally I haven’t tried any yet, but whatever I choose has to be toxic free, or organic, since -and Lyme disease fellow sufferers know this- we have issues eliminating toxins out of our cells.
Hope this fun tip helps you this summer to stay tick free, and let’s go out there and live life while we still have it. I’m encouraging myself too since lately I’ve been having anxiety getting out of the house, and been diagnosed with PTSD. But I’m planning to make the best lemonade out of all these lemons life keeps shoving in my bag. You do the same and lets hear the wonderful stories of how we’ve overcame this disease!
Have a fantastic day and God Bless:)
It’s Lyme Stew Time
For those battling Lyme disease and multiple co-infections, you know the emotional toll this disease takes on both body and mind. For only $2.99 in Kindle you can find my book of poems, a two part – before Lyme treatment and post Lyme treatment – showing a clear difference in brain functionality. For a fun twist I’ve added the word stew, or stewy, in every poem post Lyme treatment, so have fun trying to hunting them out:) Have a good day today and God Bless:)